TO THE LEGISLATIVE ASSEMBLY OF ONTARIO:
WHEREAS Ontario currently lacks a rare disease strategy, which has left those who are living with rare diseases without access to the support they need;
WHEREAS in 2016, the Ministry of Health established a Rare Diseases Working Group committee to develop a provincial framework on this issue;
WHEREAS the Rare Diseases Working Group Report was submitted to the Government of Ontario in 2017 with important recommendations, which have never been implemented;
THEREFORE we, the undersigned, petition the Legislative Assembly of Ontario as follows:
Immediately pass Bill 129, the Rare Disease Strategy Act, and implement the recommendations set out in the 2017 Rare Diseases Working Group Report